I am so Sorry that I haven't posted in so long. Thing had been rather stressful here on our end for some time that we were to stressed to post but now that things are improving and everyone is returning from much needed vacation in while Jenn has us band from the hospital in order to take, I am finding much relief in being back with my sister.
For those who didn't know, my sisters heart had stopped functioning on its own leaving Jenn relying completely on machines again on July 9Th. We had no warning, we just went from joking around to her napping and then to O2 alarms sounding. It was actually very terrifying on our end for all of our family and close friends involved. We were very lucky that the pump they hooked her heart up to kicked in and kept her going. The scary thing is that other than being extremely exhausted, Jenn didn't even know what was happening. She was awake while being on the machines and even though we were glad to be able to talk to her, it was kind of disturbing. we all fought to the very last second about leaving on vacation but she threatened to have us kicked out of the room and floor for the next week if we didn't. (The vacation is a complete other story for a later date, but ugh was it a doosy.) We aren't really sure how things came about but we know that Jenn did receive a heart on July 20Th around 11:30 pm. The heart was from a 24 year old male and although everyone here is on high alert for rejection since Jenn already has the GVHD, so far everything has been going great.
I'm also happy to announce that she is able to eat small amounts of applesauce now and has 2 of 3 casts off. They are still worried about the left leg because there is still a lot of damage and no feeling in it but only time will tell. Jenn loved getting her leg back tonight though and when i walked in, Rob was painting Jenn's toe nails a very epic shade of green with purple polka dots. I'm not sure how Rob got away with the colors but it was cute non the less. I really cant think of what else to update on. I myself am a little behind so for now I will go and if I think of something I forgot I will add it later. Thank you all for your prayers. Jenn really is a miracle for our family and we appreciate everyone helping up pray. So until next time...Good night.
Saturday, July 25, 2009
Wednesday, July 1, 2009
Crazy few days.
I am guessing it is safe to say that things might be picking up real fast here on our end. Just since the last post things have been crazy. Jenn's tests came back clean from the staph infection and they also came back clean to the point that it was now marrow time. Yesterday they reconstructed what was left of the left leg, which is going to lead to a very brutal rehab later once we get further along. At least she gets to keep it though. She currently has a soft cast on the left leg and they put the hard cast back on the right leg and for those wondering, it was another Tye dyed one. We are keeping her bright. lol. Today she was given more of Mike's marrow which took us back to Day 0 of our wonderful waiting game here in Boston. They were also trying to test her lungs to see if the steroids helped and she was able to comfortably breathe at least 10% on her own. It was almost 15% but she was really pushing herself and after awhile her O2 stats started dropping so they had to boost it back up. Each day they are going to aim for a bit more but they don't was to strain the body anymore than needed. They did take her off of the medications they were using to keep her heart on rhythm and so far the only changed were that her heart rate dropped after surgery yesterday and hasn't changed much since which is good. They said it is normal considering everything they had her on and the recent traumas to her body. She is awake here and there and already getting angry with me for eating Arby's without her. If looks could kill, I would be dead after this afternoon for sure.
I think otherwise the only other things to mention is that Mike is doing good and very proud of his marrow right now. He is a little sore but I think his Big Head will keep him going for awhile to distract him. Rob is also on his way up here tomorrow from DC so Mike is entering the protective little brother stage. Rob is one of the medics who has been kind enough to help us transport Jenn when we needed to get her between hospitals. He is also a college friend from the past and now current boy friend. We will see where this goes but otherwise we just have to take everything day by day.
I think otherwise the only other things to mention is that Mike is doing good and very proud of his marrow right now. He is a little sore but I think his Big Head will keep him going for awhile to distract him. Rob is also on his way up here tomorrow from DC so Mike is entering the protective little brother stage. Rob is one of the medics who has been kind enough to help us transport Jenn when we needed to get her between hospitals. He is also a college friend from the past and now current boy friend. We will see where this goes but otherwise we just have to take everything day by day.
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