I am sorry for the title but the last 24 hours have been nothing short of hell for not only my sister but my family and the staff here as well. Since September of 2008 we have been on a non stop fight to get my sister home and back on track with life. We always get here there and see progress but then end up right back to where we started from. Last night was another one of those. We knew that we were looking at definitely loosing the legs for sure this time if things didn't pick up very fast with all the damage to Jenn's body but yesterday after received radiation again she started seizing on us again because her body was retaining to much pressure. About 11pm last night Jenn was taken into surgery to relieve pressure and blood from the legs, stomach, one of her lungs needed drained and to drain the pressure building at the base of her skull. She didn't get back to the ICU until almost 9am. (No there was no sleep involved last night.) She is in a coma for the next 10-12 days that we know of but she is also suffering a staph infection and another infection in her blood that popped up today. Tonight they are still working on getting her fever of 104 down but so far haven't had much luck. Sadly we are only allowed in for 1 hour throughout the day because of her status and so I am not able to hold her hand this time because of the constant care being given.
I know that I am knew to faith and everything but I have spent the last 24 hours just praying for any kind of break. I am asking now that anyone who prays please pray for healing of the infections since Jenn doesn't have an immune system to fight them off herself at the moment so we can get back on track with everything else. Loosing her legs of so much smaller than the damage that can be cause from these infections. I am updating the best that I can but I am practically living in the waiting room and can only get on myspace when I am at Sue's house and I am the only one here until Saturday, so this is the best means of updating. Thank you again for all your prayers.
I am currently the caregiver of my 23 year old sister who is battling a rare form of sarcoma. This is parts of her journey and my own as she continues to help me find my place in the world.
Most of you visiting this page already know me. I am Kassie and I am a 24 year old student who has recently become the full time care giver of my 23 year old sister who has been battling cancer since 2006. Our Family has a Team page for my sister on Myspace but since I am unable to log onto myspace while I am here in the hospital with my sister, I have again had to resort to this site where I may just continue with after this so I dont have to keep going back and forth and allow our younger sister to take back over the other site.
I have refurred this page as a snow butterfly simply because those are two of the things my sister Jennifer loved and they are a few of the things that describe just the kind of person she was and the Graceful kind of person I hope I can someday become. Until that day, I am just here to help guide her until she finds her own set of wings.
- Kassie
I have refurred this page as a snow butterfly simply because those are two of the things my sister Jennifer loved and they are a few of the things that describe just the kind of person she was and the Graceful kind of person I hope I can someday become. Until that day, I am just here to help guide her until she finds her own set of wings.
- Kassie
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