For those of you who know my sister, and I mean really know her; you know that she is all about three things; Snow, Sunshine and Butterflies. To her all are symbols of hope so I think that saying we finally got a small answer to our prayers would be appropriately stated as our single ray of sunshine in this major storm Jenn is facing.
As most know, a few weeks ago my sister went from her "normal fighting" self to not eating, then to semi responsive and very much unresponsive and barely breathing on her own. We sat at home where she claimed she wanted to be with a tube down her throat yet again just waiting for what the keep telling us the end is. We know and can see in the scans and in Jenn's actions that her organs are being compressed. A feeding tube was placed directly into her stomach because she was unable to eat on her own and still continues to puke at the moment. We went through days and nights of sitting next to her bed with a suction unit to make sure nothing came up not because of a gag reflex but because her organs were actually being compressed enough to force the nutrients back up through her system. We were at a loss between vomiting and alarms from her heart going off. At one point we were even told, after testing that, not only were the tumors compressing the organs but she had minimal brain function. Thank God the doctors here misplaced the probes for that because shortly after the test she was still trying to reach out to us by squeezing our hands and occasionally opening her eyes. It was as if she was just opening us to let us know that she was still here and still fighting. We have gone through days were we didn't think she would make it because her breathing is so slow and although it has picked up a good deal, she still has a lot of aid to breathe and still remains a grayish color.
Around the 17Th/18Th I started noticing some bruising in different spots on my sisters body and we were very careful because we thought it might be bed sores or more fractures so after they became almost black and looked more like blood blisters they transferred her one more time to the hospital to try and find the cause and drain the pressure which is how we ended up back in Boston. The bruises were small fractures however the bruises itself or the blood itself had proof that the small dosage of chemo she was still on has made progress with Mike's marrow in the areas where the bruising was. We were so excited but so lost at the same time because we honestly don't know where to go from here. Jenn is in a lot of pain and has fought so long and cant really defend herself but clearly stated that she wants to fight until the end so that is what we are doing. We are going to continue on the chemo however we are allowing her body to take it slowly and work on one area at a time. Since the marrow is trying to fight they are going to continue that route and hope that radiation in between will help the organs. This is going to be difficult because she is also going to have to have Oxygen therapy again where she is put into a chamber to oxygenate the body and it takes a lot out of her also but her organs need it. We don't really know where we are going from here and we are told that she can still go at any time as her body is epically warn down but we still need to continue to pray. If they can allow the chemo and radiation to take off they would like to try and give Jenn more of Mike's Marrow to help regain her bone structure.
The end of last week and Partial weekend was 3 days of intense radiation where Jenn was kept under sedation and it was removed Sunday night. She has been up a few times since but after tests taken today and family visiting yesterday she has been sleeping most of the time. She says she will continue to fight as long as she can and the smile I got tells me that she will so that is my ray of sunshine that I will hold onto.
We have either a very long road ahead or a short journey to follow. It is in God's hands right now and that is where we leave it. Please continue to pray with us and for our Snowflake.
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trying to upload some sunset pics I took on sat that reminded me of Jenn.
ReplyDeleteI am always praying for little miss sunshine & all of her team snowflake fighters & supporters.
I am always thinking about her as well.