First I would like to say that we have finally managed to get good news. Not only did I manage to finally get a night's sleep but when I went in to see my sister for the hour that I was able to this morning, I walked in to see a room full of monitors and machines like always only something was very different. For the first time in months, my baby sister's stats were at a close enough to normal range to be back on the charts. They even managed to get her heart to beat on a steady rhythm all day! Her counts were all still at 0 and they did have to give her some blood today but we were told her body is responding well to the antibiotics so everything should be set for Friday's Surgery.
The only other health thing to report is kind of funny although it wasn't suppose to happen. They have been giving Jenn meds to relax her muscles so she doesn't breath on her own, to allow her lungs to rest and either the round of meds were wearing off or the dosage was too low but all the sudden Jenn had an alarm going off because she was trying to breath on her own but against the vent. I know it sounds serious however it is just her showing how stubborn she is and I laughed (I really cried) because it was the first time in a LONG time, an alarm was showing something good in my eyes and not bad. They did fix the problem but they are going to examine her in the morning and possible turn the vent down a bit and allow her to start assisting with the breathing. They are wanting to really watch with the condition of her lungs right now but even they don't want to fight it, if she is starting to pick up on her own.
As for the personal note, today was very uplifting for me because finally having to time to sit down with a bible and study and pray (with the many of you that are praying with and for us), I know that I owe today to God. I cried when she started fighting to breath because I knew for a fact that God grace gave her the will and strength to fight when she is barely the girl we new in September when this all started. Something that hit epically hard today was a text that I received from "The Puppet Man" a few days ago which basically said that when Jenn is sleeping, It is her time with God and last night I laid up thinking because I realized it is true. Back when this all started, one of the first times my sister woke up and couldn't talk, she started writing to my on a glove. At first I didn't know what it meant but as she got stronger and started singing again I realized they were the lyrics to a song that she always sings. The lyrics on the Glove were "...my heart aches, my body longs, I cry to you, restore my song again. How can I find you Lord, Your all that I adore..." Now first I should mention that I was really confused because it isn't like the chorus part of the song but half a verse and part of the chorus, which had us stumped until we realized she was singing in her head. Not so much to use, but using her prayers and songs to calm herself down and fight.
The reason I am bring this up is because today i received a package and a letter from my grandpa that said, "You will need these" and inside was a handful of butterflies and all her Casting Crowns Cd's that she used to drive me nuts with in the past and that's when the picture of Namesake(Jen) and Jenn popped into my mind from 2 years ago sitting in Jenn's room listening to Casting Crowns or as Katie calls it; Jenn's theme song, which is the I'll Praise You in the Storm. It's strange but I see now that I have a sister who is so wise in her years and pray that she will be able to recover and answer so many questions that I have. I also get now that she uses her music to express herself so in the future I am going to have to pay closer attention to what she is listening to and not mind it so much. I still may not understand why God is allowing her to have such a hard time of things but I am sure there is a reason and I am finally admitting that I am leaving her to him and letting go. It really isn't my fight nor is there anything I can do but pray and support her.
So I guess I am finished rambling now and should go do the dishes for Sue. I am very thankful to have a place to stay and I enjoy spending time with Sue and her 16 year old daughter Ashley. Ashley seems pretty close to my sister and I found out last night, helped aid in some of the past crazy adventures before my arrival here in Boston. It is nice to see what my sister did in her spare time. I always wondered. lol. Ok now back to those dishes.
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aww thats sweet... & uplifting. thanks & thanks for the phone txts.
ReplyDeleteYou always have God to Guide you in the storm! Thanks to your Sister you can See noW! Prayer is a two way conversation you talk then listen. it is good to hear Jenn is listening well. your freinds Eli & "Puppet man"
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