Saturday, June 6, 2009

We Really Need Prayers

I think today had to have been another one of the longest days of my life. I actually think that it might even top yesterdays epically long day. The day started out really well. No one really knows what time Jenn started waking up but about 9:30-10ish she managed to ring for the nurse to come in which started a morning full of examinations and follow ups. They gave her a dry erase board to try and write to us on which works out really good but she is really tired still so doesn't get much on very fast. By 10:15 she had already insulted the surgeon doing his follow up by telling him to smile and that it would increase his face value. I am not sure where it came from but I had to laugh even though He didn't think it was so funny. Sue just about died watching her struggle to write it. They were very pleased with her progress this morning and the fact that they were able to lower the vent down to 45% with minimal problems. For the most part Jenn has been listening to the boys talk while they were visiting and was excited to see her dad this afternoon. She didn't want him to leave the room but we are only allowed in 30 minutes every 2 hours so she had to let go. Otherwise she is sleeping. She is pretty sore and tired and even though she never tells us, I think we wore her out today.
The reason I am asking for prayers is because today we were given some answers to some of the majors questions that have been lurking around about Jenn's status for the last few days, regarding receiving new marrow, how long we would be here and if she would get to keep her legs and what not. Regarding her legs, at the currently moment they did see some slight signs of improvement in the skin however they are still unsure of her left leg. They keep holding off but they have already reconstructed her leg in the past and really cant repair it much more and still have a functioning leg. The left leg has been broken and fractured an epic amount more that the right and therefore leaves less to work with. They are going to continue monitoring them daily and we will see in another week were we stand. Now for the kicker. They pulled Jenn's Dad, My Brother and I into a meeting today to discuss the possibility of giving Jenn more of my brothers marrow to try and not only kick this cancers butt but to help reconstruct her bones since the first BMT was unsuccessful as to where cancer cells took over again. My brother has agreed to do whatever he needs to help Jenn but this is at a stand still until they can determine if 1. the tumors inside her liver are active or dormant and they can get a new liver to prevent them from spreading again (they cannot remove them); and 2. Jenn will have to go through 3 complete rounds of the radiation and Chemotherapy that they were currently working on to kill off remaining cells that were not removed from surgery. They main concerns for everything not including the liver are whether her heart can with stand the abuse and if they can continue to keep the GVHD that developed with the first BMT under control to avoid to same complications she has had so far in the past. They have just recently gained control of it, we don't want it to cause any more problems. We have discussed it all with Jenn and she just got a very sad or worried look in her eyes and all she said was she will do what she has to but she is very tired. So I think what I am asking is just prayers for strength. I know many of you have been praying for it all along but tonight I think she needs it more than most days. This has to be so frustrating for her because it means that we are basically starting from scratch and we were told that we wouldn't be home until the beginning of March maybe April which is more heartbreaking considering everything she will miss back at home. So if you could please just send up an extra prayer for strength and comfort, I would really appreciate it. I know I have been praying most of the afternoon and evening as I watched her wear out.
I will try and post again tomorrow but things should be pretty quiet this weekend with family here and it being the weekend. They are basically just pushing her to rest. I hope everyone else gets out to do something fun. Feel free to let us know if anything else happens around us that is exciting. You can leave the messages here on email us. Sorry this is so late and Thanks again for all your prayers and support.

No comments:

Post a Comment