Wednesday, April 15, 2009

I really Hate the Serious Talks

Well I am happy to report that our move home date was moved again to Tomorrow? At first it was Tuesday and then Friday but due to some scheduling issues it has been moved us to tomorrow. I know that everyone tonight is nervous about the transfer home but I think we were all more nervous when the Med Team came in to give the complete run down of what will be happening. We are hoping to be discharged by 2 pm at the latest tomorrow and that way we can make our 11 hour journey back home. Once we are back into town we are suppose to call and check in with the hospice/home care people so they know to be there in the morning for sure. (Our home days get screwed a lot lately.) Friday we have to check in with the Cancer Center and Doctors in Erie and then we can pretty much just sit back and relax. I am a little nervous about being back in the house with just us again but my sister seems to have faith in me and that is where she wants to be so that is where I will keep her. It hurt a little when Dr. H. made is clear again that things will be winding down and Jenn knows this, as we are pretty sure that it is going to be a rough haul to the end but my sister is determined to go fighting so we are going to help her fight until she can no longer do so. I have been in a lot of meetings myself about what to look for and when I should notify people, but really this is all a really new/scary experience for me and I must admit, one that I hope no one else ever has to go through.
So far she really hasnt had to many side effects to the Vincristine other than mild nausea and then she normally gets sick once or twice and then is fine. Today she was a little weaker and tonight she is more tired but that is expected so we really arent to worried about it. We are actually hoping she will sleep through most of the trip home. Tonight Jenn was kind of bummed and i think that she is missing her real mom right now but she doesnt say much about it. My mom is here with us and we are all trying our best to stay in high spirits.
I think that is really all that I have to update for tonight. I probably wont get to update tomorrow since it will be our epic travel day but I will be sure to update Friday. I also get my cast off my arm friday so there will be a lot of excitement.

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